Links to social online social groups and contacts for those suffering with Nystagmus

Below are links to social network groups. These groups have been set help to help people with nystagmus, or people with friends/family that have nystagmus. These groups are extremely helpful, extremely supportive; positively friendly to all members; and a great place to share your concerns, issues, improvement, events and anything else nystagus related.

England Facebook Group, but has members from all corners of the globe.

England Facebook page.

Nystagmus Network have also very recently set up a support group for people with Acquired Nystagmus, for further details, click here.

Also, people in the UK may find that they qualify to register as sight impaired, or severely sight impaired, which can open up a host of benefits. For more information, click here.

Nystagmus Network parents' Facebook group.

Nystagmus Network adults' Facebook group.

Nystagmus Network Friends Facebook group.

Nystagmus Awareness Day Facebook group.

The Nystagmus Family Foundation Facebook group.

American Facebook group.

American Nystagmus network, Facebook page.

American Nystagmus Network’s homepage.

Florida Nystagmus Network Facebook group.

The Canadian network is trying to get setup, so any people that will join, will be helping the network get off of the ground. Click here for further details.

Australian

Nystagmus Group Australia Facebook group.

Nystagmus Support Australia Facebook page.

German Facebook group.

Germany Nystagmus Netzwerk Facebook page.

Germany Nystagmus Netzwerk homepage.

Netherlands Facebook group.

Nystagmus Netwerk Nederland homepage.

Italian Nistagmo Italia Facebook page.

Nistagmo Italia homepage.

Norwegian Nystagmus Network Facebook page.

Swedish Nystagmus Community Facebook group.

Turkish Nistagmus (Göz Hastalıkları) (eye diseases) Facebook Group.

Nepalese Nystagmus Network Facebook group.

Indian Nystagmus Group India Facebook group.

Pakistan Nystagmus Network Facebook group.

South African Nystagmus Support SA Facebook page.

Costa Rican Nistagmo Costa Rica Facebook page.

Chilean Nistagmus Chile Facebook group.

The Royal National Institute of Blind People (RNIB), are one of the UK’s leading sight loss charities and the largest community of blind and partially sighted people. They recognise everyone’s unique experience of sight loss and offer help and support for blind and partially sighted people. This can be anything from practical and emotional support, campaigning for change, reading services and their products.

RNIB homepage.

RNIB Facebook page.

RNIB Scotland Facebook page.

RNIB Connect Radio is Europe's first radio station for blind and partially sighted people. Listen on Freeview channel 730 and online. Facebook page.

If you feel that we have missed any global pages or groups, please get in contact with us here, and we will do our best to keep this list as up to date as possible.